Misinformation
and Manipulation
An
Anarchist Critique Of the Politics of AIDS
by Joe Peacott, 1989
Introduction
AIDS, like all diseases, is having an effect not only on
those who have AIDS, but on society as a whole. There is a continuous flow of
articles in the press, TV specials, brochures from AIDS organizations, and even
ads on the subway, all of which make AIDS an issue in most peopleÕs minds.
Unfortunately, much, if not most, of the information people are receiving is
inaccurate, incomplete, and/or manipulative, including that put out by AIDS
ÒserviceÓ organizations and the AIDS activist groups. The two major pieces of
misinformation that almost everyone seems to accept are that AIDS is the most
important and dangerous health care problem facing Americans at present, and
that action by the government is the way to solve the problems caused by AIDS.
This pamphlet will argue that: while a serious problem, AIDS is not the plague
that the mainstream press, government and AIDS organizations say it is; most people
are at little risk of HIV infection and AIDS; and not only is government
activity not the solution, but eliminating government intervention from our
lives is the best way to fight AIDS.
Scope of the Problem
Both the mainstream news media and most of the radical
press, gay and straight alike, continually describe AIDS as an epidemic, or
simple as ÔtheÕ epidemic. While AIDS, like many other diseases, certainly fits
the medical definition of an epidemic, the emphasis on this term serves only to
frighten people, not to increase their understanding of the disease and its
transmission. When people are afraid it is more difficult for them to look at
and talk about a problem objectively. And an objective perspective on AIDS is
sorely lacking in this country at present. The way statistics about AIDS are
presented in most of the news media and medical literature also contributes to
the panic atmosphere associated with this disease by greatly exaggerating the
impact of AIDS compared to that of other diseases and causes of death in the
U.S.
Statistics for AIDS are generally presented in terms of the
number of people who have gotten the disease and/or died from it since the
outbreak began in this country. This makes it difficult to compare AIDS
statistics to those for other diseases/causes of death, which are generally
reported as cases per year. But even using the government figures in this form,
and comparing them to figures for other diseases, one can illustrate the
slanted way in which the scope of the AIDS ÒepidemicÓ is being depicted. In the
U.S., breast cancer kills 42,000 a year; 94,000 die in accidents, 46,000 in car
accidents; 466,000 die of cancer; and almost 1,000,000 die of heart disease.
AIDS has killed 49,976 (as of 2/28/89) since the outbreak began; 11,000 people
died of AIDS in 1987. The point is not that AIDS is not a problem, but simply
that it is one of the many diseases and dangers people are at risk of, and
significantly less dangerous for most people than many other things. Many more
gay men will die of heart disease this year than will die of AIDS, but I have
yet to see an article in the gay press advising homosexual men to avoid
high-risk eating activities, such as eating meat and dairy products, while we
are constantly told to avoid any remotely risky sex.
The ÒexpertsÓ also frequently make predictions about how
many will get AIDS, are infected with HIV (the virus, human immunodeficiency
virus, that many believe to be the cause of AIDS), or will go on to get AIDS
after being infected with HIV. The games played with statistics are even more
sophisticated and subtle in this area. Last year, the press reported on a study
that supposedly showed that 99% of people infected with HIV would go on to get
AIDS. However, if one reads this study one finds that although the researchers
favor the 99% figure, they concede that the true number who will get AIDS could
fall anywhere between 38% and 100%, according to their statistical
manipulations, and that they are only 90% confident that even this interval is
accurate. Most scientists and statisticians demand a 95%-99% confidence level
before accepting and reporting results as significant. The authors also clearly
state that their estimate of the number of gay men who will develop AIDS after
HIV infection Òshould still be treated cautiouslyÓ. Additionally, as of January
1, 1987, of six men in this study who seroconverted (developed antibodies to
HIV; this usually occurs within a few months of infection) in 1978, only three
had developed AIDS, only one out of eight infected in 1979 had AIDS, and three
out of twelve infected in 1980 had come down with AIDS, all of which argues
against the researchersÕ contention that most persons infected with HIV will
develop AIDS, since they also maintain that the average time elapsed from
infection with HIV to diagnosis with AIDS is less than eight years. In other
words, the news media took a study containing questionable methodology and
conclusions, reported the authorsÕ speculation as fact, and did not mention
either the doubts voiced by the authors themselves about their work, or the
criticism of this report by others. This is an example of how AIDS hysteria is
manufactured.
Studies that indicate that many or most people infected
with HIV will not develop AIDS are given much less exposure in the media than
those that paint a more grim picture. There have been no page one stories,
about the group of men studied at the New York Blood Center, 20-25% of whom
have no measurable immune dysfunction after ten years of infection with HIV.
And who has heard about the study showing that only 36% of a group of HIV
positive men studied for over seven years have gone on to develop AIDS? And
what newspaper reports pointed out the inconsistencies in the study I discussed
above, where the numbers in the study group developing AIDS after HIV infection
were not consistent with the researchersÕ own conclusions and indicated that
many, if not most, HIV-infected people may remain AIDS free. While these
studies do not prove that most people with HIV infection will not develop AIDS,
there is no evidence from other studies to prove that they will. In other
words, no one knows how many HIV-infected people will get AIDS, but that does
not stop the press and AIDS organizations from presenting the worst possible
scenarios when they talk about this disease.
A final example of the statistical manipulations to which
AIDS is subjected is the revised estimates of the HIV infection rate in New
York. Last year the New York Dept. of Health cut its estimate of the number of
New Yorkers infected with HIV by one half. They justified this by using a new
model for estimating HIV infection rates based on epidemiologic studies of
homosexual men in San Francisco. Both this model and their previous model could
be defended scientifically, but produced numbers that were not even close,
showing that they really donÕt know what they are talking about and their
various estimates are simply guesses. Despite this, much of the press, of
course, simply accepted these new figures as true and reported them as such.
Many in the AIDS ÒserviceÓ and activist ÒcommunitiesÓ attacked the revision as
politically motivated, to be used as a justification for cutbacks in AIDS
funding. Almost no one pointed out that these numbers were really no more valid
or invalid than previous ones. The press believes and reports as fact whatever
the government says, and the AIDS organizations accept whatever will lead to
more funding and reject what may lead to cutbacks. Neither group however, seems
interested in facts, especially if they indicate that Òthe epidemicÓ is not as
fearsome as they contend it is.
Many people are infected with HIV, many have AIDS and many
will develop AIDS. But many more people will die of other causes, and there is
no convincing evidence that AIDS will ever surpass heart disease or cancer as
killers of Americans. Despite this, people are daily subjected to AIDS horror
stories, much more dramatic and terrifying than reports of death and disability
caused by other, more common, diseases. This is done for two major reasons:
some wish to use AIDS to further their anti-sex and anti-homosexual agenda;
others wish to use an exaggerated fear of AIDS to increase government funding
of activities concerning AIDS, and thereby further their careers. Neither group
is necessarily interested in the truth about the disease, its incidence, or its
transmission. People need to be more careful about believing what they read and
hear about AIDS and not just accept what they are told by the ÒexpertsÓ.
WhoÕs at risk?
We are constantly warned these days that everyone needs to
be more careful in every sexual encounter we have: we need to practice ÒsaferÓ
sex; we need to use rubbers or dental dams at all times; we need to have sex
with fewer partners; some even say we need to marry and be ÒfaithfulÓ to one
partner for our entire lives. We are told that there are no high-risk groups of
people, only high-risk activities. But is everyone really at equal risk of HIV
infection?
In 1986 the Centers for Disease Control [CDC] changed its
method of presenting statistics and began to present the figures for people who
have AIDS who were Òborn in countries in which heterosexual transmission is
believed to play a major roleÓ (primarily people from Haiti, with some from
Central Africa) as part of the Òheterosexual casesÓ category. This category had
previously included only non-Haitian/non-Central African people who Òhave had
heterosexual contact with high risk individualsÓ (IV drug users and men who
have sex with other men). When these two categories were combined, the number
of Òheterosexual casesÓ more than doubled and the press duly reported the
ÒexplosionÓ in AIDS among heterosexuals, and has continued to devote a lot of
coverage to heterosexual AIDS ever since. But has anything really changed? Has
there been and will there be a major outbreak of AIDS among non-IV drug using
heterosexual people?
The
number of heterosexual cases reported by the CDC as of 2/28/89 is only 4%, the
same percentage as when the definition of heterosexual cases was changed in
1986. Not much of an explosion. The ÒdoublingÓ of heterosexual cases in 1986
was not a real change, it was merely a statistical ÒblipÓ caused by combining
two previously separate categories. There are few heterosexual cases now, and
although there may be an increase in the future due to the increasing numbers
of people who have acquired HIV infection through IV drug use, most of whom are
heterosexual and can infect their sex partners, there is no reason to predict a
major increase in AIDS among heterosexuals who do not use IV drugs or have
regular sex partners who do. Even Surgeon General Koop, who is pushing the
lifelong monogamy line, says that he is Òquite sure that we wonÕt have an
explosion in the heterosexual population.Ó.
There have been several studies in the last two years that
have emphasized the low risk of contracting AIDS for most heterosexuals. A
study in Denver of approximately 1,000 persons seen in a VD clinic, showed
ÔzeroÕ cases of HIV infection in low-risk individuals, i.e., non-IV drug using
heterosexuals who did not have sex with IV drug users. A similar study in
Seattle of 343 people showed no infections in persons who were not homosexual
men, and a Queens, N.Y. study showed one infection among 200 low-risk persons.
These data indicate that there are indeed low-risk people, and that most people
in the U.S. fit the low-risk description. An article in Journal of the American Medical Association [JAMA] last year estimated the risk of acquiring HIV infection
during rubber-free penis-vagina sex with a low risk person is approximately 1
in 5 million for one encounter, and 1 in 16,000 for 500 encounters. The
researchers stated that Òthe risk of AIDS from a low-risk encounter is about
the same as the risk of being killed in a traffic accident while driving ten
miles on the way to that encounter.Ó These articles, whose information is
certainly important to the discussions of transmission of AIDS through sex,
although covered briefly in the press, are seldom mentioned in discussions of
what safe sex is and who needs to practice it.
Prostitutes are considered by some to be a high risk group
for HIV infection and the Public Health ÒServiceÓ lists sex with a prostitute
as a high-risk activity. As with so much we read about AIDS, this is simply not
true. CDC studies show that only prostitutes who use IV drugs or have ongoing
sexual relationships with IV drug users have become infected. Another study
showed that prostitute women in San Francisco had the same rate of infection as
other women who had multiple partners or partners at risk of HIV infection.
There is no evidence that prostitutes who do not use IV drugs and are not sex
partners of IV drug users are any more at risk than other women with multiple
partners.
Additionally,
there is no evidence to back up assumptions that prostitutes are ÒspreadingÓ
HIV infection and AIDS to their customers; 80% of prostitutes use rubbers some
or all of the time, and most of the time they engage in low risk sex activities
such as hand jobs and blow jobs anyway. Despite the fact that street
prostitutes see approximately 1,500 customers a year, 20% of men hire
prostitutes regularly, and 70% hire them occasionally, as of September 1987,
only 33 men (out of more than 40,000 persons who had AIDS at the time) whose
primary ÒriskÓ factor was sex with prostitutes had been diagnosed with AIDS.
COYOTE, an organization of prostitutes, estimates that if prostitutes were
truly spreading AIDS, by 1988, Òat least 100,000 straight, white, middle-class
businessmen would have been diagnosedÓ with AIDS. Clearly, this hasnÕt
happened.
Despite the availability of the above information, the U.S.
Public Health ÒServiceÓ, most of the press, both gay/lesbian and straight,
virtually all the AIDS organizations, and even ads in the subway (virtually all
of which appear to be directed at non-drug using heterosexuals), take the
position that straight people are at high risk for AIDS and need to take the
same precautions when having sex that gay men and IV drug users need to take.
They spread the myth that there are no high-risk groups of people, but only
high risk activities. However, one of the studies cited above convincingly
argues that, because the rate of infection is so low among low-risk groups,
unprotected sex with a low-risk person is safer than sex with a condom with
someone in a high-risk group. But most AIDS ÒexpertsÓ and activists seem
unwilling to discuss this view, and prefer to spread the myth that ÒweÕre all
at risk.Ó
There appear to be two main motives for putting forth this
view. Some wish to scare heterosexuals into either celibacy or monogamy and
marriage. Others, especially AIDS organizations seem to be encouraging this
view in order to increase the amount of government money they can obtain,
reasoning that the government wonÕt fund their activities unless they think
heterosexual non-drug users might get sick as well, since they really donÕt
care about queers and drug users. Although this may be true, and the strategy
effective (there certainly is a lot more AIDS money coming from governments
these days), it does not justify the misinformation and fear being spread.
Unfortunately, the AIDS bureaucracy, both governmental and non- governmental
seems more interested in making rules for others to live by than in providing
people with the truthful information they need to make informed choices about
what activities they want to engage in and what risks they wish to take.
Safe sex and queers
Advice about ÒsaferÓ sex for men who have sex with men,
although directed at a group of people who are truly at high risk for HIV
infection, is no less full of misinformation and half-truths than guidelines
for heterosexuals. In some ways the Òsafer sexÓ literature for men who have sex
with men is even worse than that directed at heterosexuals. At least the
ÒexpertsÓ generally arenÕt telling heterosexual men and women not to fuck when
they have sex (although, of course they should only have monogamous, preferably
marital, sex), but are simply telling them to use rubbers when they do. Much
ÒsaferÓ sex advice to men, however, suggests not only using latex in all sexual
contacts, but even encourages men to give up homosexual sex entirely, and
instead learn to ÒeroticizeÓ non-sexual activities. A recent edition of ÔNextÕ,
a magazine distributed free in homosexual bars in Boston, in a particularly
offensive and anti-sex series of articles lists the following as Òlife
affirming erotic optionsÓ in their Òsensual buffetÓ: flirting, kissing, phone
sex, sensuous feeding, and consensual exhibitionism and voyeurism. The writer
also recommends dirty talk, leather, lubricants (he doesnÕt specify what is
being lubricated), and bubble baths. We are encouraged not to Òscrew up
something perfectÓ like playing with whipped cream by introducing those much
talked about Òbodily fluidsÓ. These articles, and workshops sponsored by AIDS
organizations encourage men to learn to consider non-sexual activities
satisfying substitutes for fucking and sucking. Michael Callen of the People
With AIDS Coalition in New York is one of the few AIDS activists who oppose
this attempt to eroticize non-sex activities. He has said Òwhat I find so
pathetic is the cheery sloganeering of the ÔGreat Sex is Healthy SexÕ
campaigns. For those of us who proudly referred to ourselves as Ôhot sex pigsÕ,
ÔhealthyÕ sex is definitely ÔnotÕ great sex. It is a depressing consolation
prize and I sometimes want to smack those who pretend otherwise. Yes, if we
want to stay alive, we ÔhaveÕ to practice safe sex. But letÕs not pretend itÕs
the real thing.Ó
In addition to encouraging men to avoid real sex
altogether, the AIDS educators encourage men to view all sex between men not
involving a rubber as equally risky, and people who do not share this view are
portrayed as stupid and irresponsible. But, there is evidence that not all
sexual activities and not all Òexchanges of bodily fluidsÓ are equally risky.
Getting fucked in the ass, and, to a lesser extent, getting fucked in the cunt,
appear to be the only two high risk sexual activities. A number of studies
published in the medical literature, for instance, have found a minimal risk of
becoming infected with HIV from giving blow jobs, or being the fucker in rectal
sex. A study from 1987 showed essentially no difference in rate of HIV infection
between men who had given up both fucking and sucking and those who had
continued to have oral sex (some of whom had also continued fucking, but not
getting fucked) in the two years prior to the start of the study, while those
who continued getting fucked had a significantly higher rate of HIV infection.
Another study the same year showed that of 147 HIV-free gay men who gave blow
jobs, some of whom also swallowed cum, but none of whom fucked, not one became
infected in six months of follow-up, while 95 out of 1,998 men who engaged in
fucking became infected during the same period. A report at a national AIDS
conference in 1987 reported that 50 of 522 men who fucked became infected, but
none of the 50 who engaged only in blow jobs acquired HIV infection during an
18 month period.
Despite these encouraging reports, there is evidence that
cocksucking is not totally risk-free. There have been some reports of infection
with HIV in men who engage only in oral sex, but the numbers are very small,
the risk of infection from cocksucking appears to be minimal, and getting
fucked without a rubber seems to be the most risky sexual activity and the
primary mode of transmission of HIV between men. AIDS activists and educators
in several other countries, such as Canada, Australia, and some in Britain, as
well as the Gay MenÕs Health Crisis [GMHC] group in New York, based on this
kind of information, consider cocksucking to be a low risk activity. Few AIDS
educators or activist types in the U.S. are willing to give people this kind of
information or emphasize the vast difference between sucking and fucking.
Instead, most AIDS and gay/lesbian groups and newspapers, with the exception of
GMHC continue to put out the most conservative possible safe sex guidelines,
listing blow jobs as equally risky as fucking, which is simply not true.
Cocksucking is not the only low risk activity
inappropriately considered highly risky by the AIDS establishment.
Tongue-kissing, watersports (pissing), and rimming (licking assholes),
activities even less risky than cocksucking are considered moderate-to-high
risk activities by most AIDS organizations. This, combined with the advice to
shower and have your partner shower, which is often seen in safe sex literature
[showering does ÔnothingÕ to prevent HIV or other sexually transmitted
infections) makes me think that there is as much concern here with encouraging
people to engage in ÒnicerÓ, ÒcleanerÓ sexual activities, as there is in
preventing HIV infection. It all seems awfully anti-sex.
The anti-sex hysteria has even taken root among homosexual
women. They are advised by womenÕs and gay/lesbian newspapers, the AIDS
bureaucrats, and ÒsexpertsÓ Susie Bright and JoAnn Loulan, that they are as
much at risk of acquiring HIV infection as everyone else. This myth is being
spread despite the fact that there have been few reports of possible
transmission of HIV infection between two women in the medical literature, and
one report of possible transmission of HIV to a man from eating out a woman.
The CDC reports only seven Òprobable cases of woman-to-woman transmissionÓ of
HIV (but no cases of AIDS acquired by woman-to-woman sex), and purveyors of the
myth of lesbian AIDS like The Village
Voice and ACT UP cite only three or five cases. Even if the number the CDC
cites is accurate, this bears out my contention that woman-to-woman sex is
nearly risk-free, since millions practice woman-to-woman sex, while it appears
that no more than seven have acquired HIV infection sexually. Yet, homosexual
women are urged to use rubber dams and gloves and take various other
precautions at all time.
Most AIDS ÒexpertsÓ and activists are not interested in
increasing peopleÕs awareness of relative risks and coming to their own
conclusions. They instead wish people to unquestioningly follow the anti-sex
guidelines which these experts have come up with. Certainly there are risks
involved in cocksucking and eating out women, as well as other, even lower-risk
activities, which the ÒsaferÓ sexers advise against, but these are much lower
than the risks of rectal, and to a lesser extent, vaginal, fucking. Despite
this, virtually all safe sex guidelines describe activities with greatly
different levels of risk as being equally dangerous. A brochure by the AIDS
Action Committee in Boston, for example, lists rimming, cocksucking, eating out
women, and fucking without a rubber in the same category, as high risk
activities. Instead, people should be informed of the relative risks of
different kinds of sex, and encouraged to make their own choices about the
risks they are willing to take.
The majority of AIDS educators want no part of such an
approach. At a lesbian/gay health conference in Boston last year, some AIDS
activists confronted AIDS educators at a workshop on safe sex about the supposed
high level of risk associated with cocksucking. The educators defended their
commitment to discouraging men from sucking cock, and felt that Òchanging the
rulesÓ would lead men to question their credibility (a positive development, in
my opinion), and would confuse people. They said they preferred the Òon me, not
in meÓ rule because it was simple and easy. Additionally, when an article
entitled ÒI Hate Safe SexÓ which questioned the whole anti-sex approach of the
AIDS establishment appeared in a Boston gay/lesbian paper, it was criticized by
the AIDS Action Committee, who claimed the article would Òundermine the efforts
of AIDS organizations throughout the countryÓ. These kinds of responses by AIDS
educators to criticism of safe sex dogma clearly show their contempt for people
and their sexual desires, and show that their commitment to their ÒsaferÓ sex
ideology outweighs their interest in supplying people with honest information.
The safer-sexers and their allies in government have not
confined their activities to propagandizing against sex. In a number of cities
places where men congregate to engage in consensual sex have been shut down or
driven out of business by the government. In all of these cases there has been
widespread support for these shutdowns among some sectors of the Ògay
communityÓ. In Boston, Jeff Epperly, the editor of the local mainstream
gay/lesbian paper, ÔBay WindowsÕ, not only editorialized in favor of the
shutdown of the only homosexual bathhouse in Boston, he actively collaborated
with the city in its ÒinvestigationÓ and later closing of the baths. (He has
also editorialized in favor of cutting down the reeds in a part of a park in
Boston in order to prevent men from having sex there.) He and one of his
writers went to the baths, spied on the sexual activities of the customers, and
informed the city health department of their ÒfindingsÓ. Epperly later attended
meetings with the health department officials who subsequently took action
against the baths. The idea that people were engaging in sex of which he
disapproved seems to so enrage Epperly and people like him that no restriction
of personal freedom seems too high a cost (for other people) to pay to prevent
ÒunsafeÓ sex between men.
The ÒsaferÓ sexers tell people that they should engage only
in totally risk-free sex. And some people feel that attempting to totally
eliminate risk from their sex lives, even at the expense of eliminating sex
altogether in some cases, is in fact the appropriate strategy. This strikes me
as odd, since many of these people are willing to take risks in other areas of
their lives every day, like smoking tobacco, eating meat, driving a car, or
even crossing the street against the light. Many of us wish to lower our risk
of acquiring HIV, but are willing to take some risks in order to continue
having a pleasurable and satisfying sex life. While driving without a seatbelt
is arguably more risky than wearing one, I find driving more comfortable
without one. The risk of injury while driving, whether strapped in or not, is
small, and IÕm willing to accept the possibly increased, but still small, risk
of driving without a seatbelt in order to make driving more enjoyable.
Similarly, I would be at lower risk of acquiring HIV infection if I stopped
giving and getting rubber-free blow jobs, but I prefer to take that small risk
in order to continue having an enjoyable sex life. As in all areas of my life,
I, like many, if not most, people weigh the possible risks of my actions,
decide if the benefits outweigh the risks, and act accordingly. Providing
people with honest information about relative risks associated with different
sexual activities, instead of unsubstantiated anti-sex warnings, would enable
individuals to make informed decisions about their behavior and what level of
risk is acceptable for them. A risk-free life would also be a pleasure-free
life, and the total elimination of risk from my life is not a goal of mine.
Encouraging people to eliminate risk from their sex lives, even at the the cost
of eliminating sexual pleasure, as the AIDS educators recommend, is an attempt
to narrow peopleÕs options and manipulate their behavior under the pretext of
concern for their health.
IV drug use and AIDS
Another area where the AIDS ÒcrisisÓ is being used as a
pretext to restrict the scope of peopleÕs personal activities is that of
recreational IV drug use. IV drug users and their sex partners make up a large
and growing proportion of HIV-infected people and people who have AIDS. These
people, while being urged to use safer injection techniques, are also being
urged to give up IV drug use totally as the most efficient way to stop
transmission of HIV among drug users and their partners. Although similar to
the safe sex/no sex campaign directed at homosexual men, the anti-drug
campaign, disguised as an anti-AIDS campaign, is based on even more faulty
premises, most importantly, the myth that IV drug use is inherently a high risk
activity which should be outlawed.
Drug use would be totally free of risk from infectious disease
transmission if the government simply decriminalized needle and drug use.
Needle exchange programs are not what is needed, in part because they force
drug users to submit to the surveillance of the public health authorities, but
most importantly because they do not address the main cause of needle sharing
and subsequent transmission of HIV: an inadequate supply of sterile needles
produced by government restrictions on the sales of needles. In the 38 U.S.
states that do not criminalize possession of needles without a physicianÕs
prescription, IV drug users are not at high risk of AIDS because needle sharing
is minimized. The states with the highest number of IV drug users are also the
states that restrict access to needles, contributing directly to the extremely
high rate of HIV infection in drug users in New York, New Jersey, Connecticut
and other states. The government and the media constantly regale us with
stories about the high rate of HIV infection among children born in New York,
most of them children of IV drug users, but fail to point out that most of
these infections would never have occurred were it not for laws against needles
in New York. And even the totally inadequate needle exchange program being
conducted in New York has been opposed by many politicians. These politicians
and their laws are contributing to the death of IV drug users, their sex
partners, and their children.
Decriminalizing and deregulating drug and needle use, would
not only dramatically cut the rate of HIV infection among drug users, it would
also reduce the other health risks of recreational drug use, such as
endocarditis, poisoning by additives, and unintentional overdose, by bringing
drug sales and manufacture aboveground and open to examination by users.
Decriminalization and deregulation would also produce a precipitous fall in
drug prices, improving the economic situation of drug users (and, incidentally,
eliminating most street crime, most of which is a result of users seeking cash
to pay high drug prices or dealers fighting to monopolize a lucrative market).
These changes would likely result in an improvement in the general health of
drug users which would help those already infected with HIV to better deal with
the infection.
Goverment is part of the problem, not the
solution to the AIDS Òcrisis.Ó
Most people in this country, including most leftists and
many anarchists, look to government as a source of help in dealing with AIDS.
As in the case of IV drug use, government intervention in any area of our
lives, including AIDS and its associated problems, causes more problems than it
ÒsolvesÓ. Eliminating government intervention in health care; ÒtherapeuticÓ
drug research, manufacture and sales; recreational drug and needle use and
sales; and sexual activity, including sex-for-a-fee, would greatly increase
peopleÕs options in both AIDS prevention and AIDS treatment.
As stated above, decriminalizing and deregulating
recreational drugs and needles would decrease transmission of HIV and lead to
better general health among IV drug users. Abolishing the FDA and deregulating
the research, manufacture and sales of ÒtherapeuticÓ (or non-recreational)
drugs would also be of benefit in dealing with AIDS and HIV. The FDA holds up
the release of drugs with proven benefits for people who have AIDS, like
ganciclovir [DHPG], a drug used successfully for several years to treat
retinitis caused by cytomegalovirus [CMV], a common infection in people who
have AIDS. They recently tried to force people into sight-threatening studies
where the drug would be withheld from some people until their disease worsened,
potentially leading to blindness. In order to impose this on people the
government had forbidden the manufacturer to provide the drug to people who
needed it on a Òcompassionate useÓ basis, as it had in the past. Political
pressure by AIDS activists resulted in a reversal of this policy, and the FDA
is expected to approve the drug soon. The FDA also held up approval of
aerosolized pentamidine, a treatment proven to prevent ÔPneumocystis cariniiÕ
pneumonia, the most frequent cause of death in people who have AIDS,
discouraging physicians from providing this treatment, and insurance companies
from providing coverage for it. This policy resulted in many deaths that were
preventable, and approval was granted only after widespread protests by AIDS
activists. Eliminating regulation of drugs would enable people to use these
drugs, as well as other drugs that may be effective in treating AIDS, but whose
use is criminalized by government regulations.
Deregulation of drug research and manufacture would also
result in the production of many new drugs to fight AIDS. Expensive
government-mandated drug trials prevent many drug manufacturers from developing
some drugs, and prevent new drug makers from entering the market, by making the
business too costly. Abolishing the system of drug patents would bring down
drug prices dramatically and allow new manufacturers to more easily enter the
market. These two developments would result in more varied and cheaper drugs to
use against AIDS (and other diseases as well). Doing away with the prescription
system, which prohibits people from making their own choices about what drugs
they wish to take, and forces them to go along with the dictates of
government-certified physicians if they wish to get any drugs at all, would
enable people, at long last, to really make their own decisions about their
health care. A marketplace made up of totally unregulated drug makers competing
for the business of consumers unencumbered by the dictates of government and
its approved physicians would result in cheaper, more varied, and, hopefully,
safer and more effective drug treatments for AIDS.
Deregulating the rest of health care would similarly
increase peopleÕs freedom to choose how they wish to maintain their health and
treat their illnesses. By imposing restrictions on who can provide health care
advice and treatments through licensing laws and boards of registration, the
government prevents people from choosing which health care practitioners they
wish to hire. The system of prescribing (and proscribing) drugs and other
treatments and procedures pushes people into the hands of government-approved
MDs, as there is no other way, under the current system to obtain many drugs
and other medical treatments. Abolishing professional licensure and
prescription laws would enable people to choose the people, drugs and
treatments they wish to employ, without requiring them to seek the permission
of ÒexpertsÓ licensed by the state.
Laws regulating individualsÕ sexual activities have also
hindered the fight against AIDS, Criminalization of homosexual sex and laws
preventing homosexuals from working in certain jobs and from participating in
some activities, such as adopting or providing foster care for children,
contribute to a pervasive anti-homosexual atmosphere in this country which
discourages many men who engage in homosexual sex from acknowledging and
accepting their sexual tastes. These men may, out of fear, not be willing to
frequent places or read literature where information about truly risky sexual
activity is available and remain ignorant of the hazards to which their sexual
activity may expose them. Additionally, many men who engage in sex with men
ignore information directed at homosexual men, since they donÕt consider
themselves homosexual because of fear of the possible consequences of being
known as homosexual. Abolishing laws which criminalize homosexual sex and
discriminate against homosexual people would make it easier to fight the
anti-homosexual bias so widespread in this country and would, hopefully, make
it easier to reach all people who need information about AIDS.
Another group of people among whom anti-sex laws have
contributed to an increased rate of HIV infection and AIDS is people who engage
in sex for a fee, i.e., prostitutes. Criminalization of prostitution has
resulted, at least among street prostitutes, in the association of this
activity with other outlawed activities, especially IV drug use. Street
prostitutes have a high rate of IV drug use, as well as often being in
long-term sexual relationships with IV drug users, these two activities being
the main causes of the relatively high rate of HIV infection among prostitutes
in some areas of the U.S. Decriminalization of providing sex for a fee would
enable prostitutes to work out of their homes or offices, advertise their
services, and otherwise conduct their occupation as other service providers do,
without living in fear of police and pimps. This ÒnormalizationÓ of their
occupation would make them no more likely than anyone else to use IV drugs, and
therefore put them at low risk of HIV infection.
Virtually all writers on the subject of AIDS, including
even some anarchists who share my criticisms of government intervention in
peopleÕs lives, feel that increased government funding for Òthe fight against
AIDSÓ is a positive step. These people feel that without government funding, no
research would be done, no new drugs developed, and no health care given to
indigent people who have AIDS. Since such an idea is so widely accepted, people
who believe this feel no need to argue the merits of their position; they
simply state it and assume, rightly, that most people will agree. But
abolishing government regulation of health care and drug development, would not
only result in better AIDS treatment, as argued above, but would also eliminate
the need for government funding.
Government funding is necessary to those who now do
research into AIDS treatments and provide AIDS-related health care because of
the restrictions imposed by government laws. Expensive, often unnecessary,
government-mandated drug trials force drug makers to lay out massive amounts of
money to develop new drugs. They are then awarded with exclusive patents that
allow them to monopolize the market and charge extortionate amounts of money
for their products. Because of the expense of the research and development
process, many researchers rely on government funding to continue their work,
and many people who have AIDS must rely on government to pay for their
overpriced drugs. An unregulated market in drug manufacture and sales would
enable drug makers to do research and develop drugs cheaply, and price
competition produced by abolition of patents would produce affordable drugs.
With cheap drug research and manufacture and cheap drugs, the necessity for
state funding in the AIDS drug business would be eliminated.
Provision of other treatments and care for people who have
AIDS would also be better served by deregulation of health care than by
increased government aid. State restrictions on entry into the health care
occupations and regulation of hospitals and other health care facilities is
what makes health care in this country so expensive. Government-certified doctors
have a virtual monopoly on provision of health care in the U.S., supporting
government-imposed restrictions both on their own numbers, through state
regulation of medical schools, and on other health care providers through
occupational licensure laws. Hospital and health care nstitution regulations
prevent new and/or alternative health care institutions from opening because of
the expense of complying with government rules, many of which do nothing to
improve health care or protect patients. (During the early 70Õs in Chicago, an
illegal group, the Jane Collective, provided safe, effective, and cheap
abortions without any government oversight.) This artificial shortage of health
care providers and institutions leads to hugely inflated health care costs. Abolishing
state regulations and the medical monopoly would lead to plentiful and
affordable health care providers and facilities of all healing philosophies,
again obviating the need for government funding of health care.
Certainly there are some people who would not be able to
afford even much cheaper health care. But government is not the only, and
surely not the best, source of money. AIDS education and service organizations
(as well as other private groups like the American Cancer Society) have been very
successful in raising money from non-governmental sources. GMHC raises 80% of
its $11,000,000 budget from non-governmental sources. Such charitable
organizations, funded by private contributions would, as they have done
historically, be able to assist those who were still in need of financial
assistance after health care deregulation. Taking voluntary contributions has
the added benefit of removing attempts at government control of the activities
of private groups, as when a $700,000 federal research contract with GMHC was
not renewed because of government opposition to a sexually explicit ÒsaferÓ sex
comic book they published. Avoiding government, including government money,
whenever possible is the best way to ensure freedom of action in providing quality
services to people in need.
In AIDS and health care policy, as in all areas of its
activity, government is interested only in serving the interests of itself, and
the politically and economically powerful social groups with which it is
allied. Getting government out of the health care business, as well as the rest
of our lives, is the best way to confront AIDS and other problems we face.
Annotated Bibligraphy
Act
Up/Boston. Various flyers on AIDS research and medical ethics, 1988.
AIDS
Action Committee. Man to Man: A Frank
Discussion on AIDS to Help Reduce Your Risk, 1988. Typical ÒsaferÓ sex
literature, equating the risks involved in fucking, sucking, and rimming.
---------.
Safer Sex Can Be Sensuous!. 1987. Similar to above pamphlet.
Andrews,
Lori B. Deregulating Doctoring: Do
Medical Licensing Laws Meet TodayÕs Health Care Needs? PeoplesÕ Medical
Society, 1983. Argues against current medical licensing laws.
Batchelor,
Stephen P. ÒI Hate Safe Sex.Ó Bay Windows,
July 10-16, 1986.
Beckham,
Beverly. ÒAIDS: It Should Frighten Us All.Ó Boston
Herald, April 4, 1989. Typical fear-mongering discussion of AIDS among
heterosexuals.
Bergquist,
Cynthia. ÒThe Real AIDS Culprits.Ó Nomos,
May/June 1987. Argues that government encourages spread of AIDS.
Boston Globe. Oct. 30, 1988. Statistics on deaths from accidents.
--------.
Nov. 7, 1988. Statistics on deaths caused by motor vehicle accidents.
Brecher,
Edward M. ÒStraight Sex, AIDS, and the Mixed-Up Press.Ó Columbia Journalism Review, March/April 1988. Discusses how the
media created the myth of Òthe great heterosexual AIDS epidemic.Ó
ÒBostonÕs
Only Bathhouse.Ó Unsigned editorial in Bay
Windows, Feb. 2, 1989. Gay editor calling for permanent closing of
homosexual bathhouse.
Botkin,
Michael C. ÒLes/Gay Health Conference Report: Blow Up Over Oral Sex Among Many
Controversies.Ó Gay Community News,
Aug. 21-Sept. 3, 1988.
Bull,
Chris. ÒCity Officials Drain Beantown Baths.Ó Gay Community News, Feb. 5-11, 1989. Discusses Ògood gaysÕÒ
complicity in and support of closing of homosexual bathhouse.
--------.
ÒÔMissing: 200,000 New Yorkers.ÕÒ Gay
Community News, Aug. 7-13, 1988. Discusses revision of HIV prevalence
figures in New York.
--------.
ÒMore New York City Smut Theaters Shut.Ó Gay
Community News, Feb. 19-25, 1989.
Callen,
Michael. ÒSafer Sex Necessary, But Poor Substitute.Ó Letter in Gay Community News, Oct. 28, 1988.
--------.
ÒA Celebration of Being Gay in the Age of AIDS.Ó People With Aids Coalition Newsline, June 1988. Critical of Ògreat sex
is healthy sexÓ campaigns.
--------.
Article in PWA Coalition Newsline,
Sept. 1988, points out that revision of HIV prevalence figures in New York
shows that the ÒexpertsÓ really donÕt know how many have HIV and never did.
City of
Boston, Department of Health and Hospitals. Women
Are Getting AIDS, Too. 1987. ÒSaferÓ sex brochure for heterosexual women
with typical conservative advice, i.e., equating risk of sucking and fucking,
encouraging ÒeroticizingÓ of non-sex activities, such as talking sexy, sexy
underwear, as substitutes for sex.
Cohen,
Hillel. ÒHow ÔScientificÕ Report on AIDS Distorts the Truth: Predictions of 99%
Deaths Based on Unproven Guesses.Ó Workers
World, June 30, 1988. Critiques San Francisco study of HIV-infected men.
COYOTE/National
Task Force on Prostitution. Arguments
Against Mandatory HIV Testing of Prostitutes and Increased Charges for Those
Who Test Positive.
--------Prostitutes and HIV Infection: What the
Studies Show.
--------Women and AIDS/Prostitutes and AIDS: Public
Policy Considerations. Position papers. Contain statistics I cite regarding
prostitutes and AIDS.
Day,
Barbara. ÒOpinion Split on Needle Program.Ó The
Guardian, Nov. 9, 1988. Discusses opposition of politicians, ministers and
doctors to New YorkÕs needle exchange program.
Dooley,
John. ÒTo Suck or Not to Suck?Ó Gay
Community News, Jan. 29-Feb. 4, 1989. Reports on studies and
recommendations about oral sex and HIV transmission from both sides of the
issue.
Dye,
Bru. ÒAn AnarchistÕs Response to AIDSÓ. Aqua,
#1. Published by Anarcho Queers Undermining Authority. Supports increased state
funding to fight AIDS and criticizes government for doing too little.
Eighners,
Lars. ÒAre Rimming and Fisting Safe?Ó Letter in Gay Community News, Jan. 25, 1986. Argues that these are low-risk
activities. Also very critical of AIDS projects and self-appointed ÒcommunityÓ
leaders.
Elze,
Diane. ÒUnderground Abortion Remembered.Ó Sojourner,
April & May 1988 [two parts]. Interview with members of Jane Collective.
Erbland,
Peter. ÒLocal FDA office Rapped for Policy on drug for CMV.Ó Bay Windows, Feb. 2, 1989. Discusses FDA
policy regarding ganciclovir.
Firestone,
Jennifer. ÒMemoirs of a Safe Sex Slut.Ó Bad
Attitude, Fall, 1987. Raises some questions about ÒsaferÓ sex dogma for
homosexual women.
Flynn,
Sean. ÒBattling in Vein?: A Lonely War Against IV AIDS.Ó The Boston Phoenix, Dec. 16, 1988. Reports on activities and arrest
of person distributing sterile needles to IV drug users in Boston.
Forman,
Judy. ÒDegree of AIDS Risk to Some Questioned.Ó The Boston Globe, June, 1987. Contains data from studies in Denver,
Seattle, and Queens demonstrating the low rate of HIV infection among
heterosexuals.
Fox,
Philip, et. al. ÒSaliva Inhibits HIV-1 Infectivity.Ó Journal of the American Dental Association. May, 1988.
Gorman,
Christine. ÒPlague of the Innocents.Ó Time,
Jan 25, 1988. Report on HIV infection among newborns in New York.
Gross,
Michael. ÒAIDS Update.Ó Bay Windows,
Aug 4, 1988. Discusses transmission of HIV via oral sex.
--------
ÒPredictions for HIV Positives Are Just That.Ó Bay Windows, July 7, 1988.
Guilfoy,
Christine. ÒAIDS: Notes on an Epidemic.Ó Bay
Windows, Apr. 30, 1987. Discusses report of possible woman-to-woman
transmission of HIV.
Harris,
Judy. ÒStudy Alleges Woman-to-Man Transmission.Ó Gay Community News, Jan. 29-Feb. 4, 1989. Discusses case of
transmission of HIV from a woman to a man via oral sex.
Hearst,
Norman, et. al. ÒPreventing the Heterosexual Spread of AIDS; Are We Giving Our
Patients the Best Advice?Ó Journal of the
American Medical Association, April 22/29, 1988. Discusses the low rate of
HIV infection among heterosexuals and the low risk of acquiring HIV infection
through heterosexual sex.
Hessol,
N. A.,, et. al. ÒThe Natural History of HIV Infection in a Cohort of Homosexual
and Bisexual Men: A 7-Year Prospective Study.Ó Proceedings of the 3rd International Conference on AIDS. Discusses
study where only 36% of the HIV positive men studied developed AIDS during 88
months of follow-up.
Jerking Off. Summer, 1987. Radical gay/lesbian booklet from Toronto. Gives standard
ÒsaferÓ sex advice, including advising showers.
Kingsley,
Lawrence A., et. al. ÒRisk Factors for Seroconversion to Human Immunodeficiency
Virus Among Male Homosexuals. The Lancet,
Feb. 14, 1987. Report of study showing no risk of HIV infection from giving
blow jobs.
Knox,
Richard A. ÒNYC Figures on Prevalence of AIDS Virus Criticized.Ó The Boston Globe, July. 22, 1988.
Koop,
C. Everett. Understanding AIDS, 1988.
Labels sex with a prostitute as unsafe. Official U.S. government publication.
Standard inaccurate ÒsaferÓ sex advice.
ÒKoop: Concern on AIDS Vaccine.Ó The Boston Globe, Nov. 7, 1987. Contains
quote from Koop dismissing myth of an impending AIDS ÒexplosionÓ among
heterosexuals.
Kroll,
Judy. ÒAid deadlier than AIDS.Ó The Spark,
Nov./Dec. 1983. Argues for non-governmental, non-political strategies to deal
with AIDS.
ÒLetÕs
Stick to the Real Issues.Ó Unsigned editorial. Bay Windows, Feb. 9, 1989. ÒGood gayÓ support for closing of
homosexual bathhouse in Boston.
Lui,
Kung-Jong, et. al. ÒA Model-Based Estimate of the Mean Incubation Period for
AIDS in Homosexual Men.Ó Science,
June 3, 1988. Purports to show that 99% of HIV-infected men will get AIDS.
Lumenello,
Susan. ÒCommunity Reacts to Closing.Ó Bay
Windows, Feb. 2, 1989. ÒGood gaysÓ come out in support of closing
homosexual bathhouse in Boston.
Lynn,
Debra. ÒLesbian Safe Sex Sequel 1.Ó Bad
Attitude, Spring, 1988. Lesbian ÒsaferÓ sex fiction.
Massachusetts Department of Public Health
/Boston Department of Health and Hospitals. AIDS Newsletter, Mar. 1989. Cites number of AIDS deaths as of Feb. 28,
1989, as well as 4% figure for heterosexual cases.
McKnight,
Jennie. ÒSafer Sex Ads Advocate Sucking.Ó Gay
Community News, Oct. 30-Nov. 5, 1988. Reports on ad campaign in Britain
emphasizing low risk of HIV transmission via cocksucking.
OÕNeill,
Cliff. ÒFDA Removes Roadblocks for AIDS Blindness Drug, DHPG.Ó Bay Windows, Mar. 23, 1989.
Queer
Anarchist Network Prison Support/Wimmin [sic] PrisonersÕ Survival Network.
Untitled pamphlet about AIDS. Contains lots of advice on Òsafer sex,Ó discusses
low risk of oral sex, but most guide-lines pretty standard. Does discuss
minimal risk of woman-to-woman HIV transmission.
Reeves,
Tom. Article in The Guide to Gay New
England, Sept. 87. Cites data from several studies on AIDS and oral sex
showing no transmission of HIV via cocksucking.
Reyes,
Nina. ÒArson Destroys Bathouse Building.Ó Next,
Feb. 15, 1989. Documents complicity of Ògood gaysÓ in closing of homosexual
bathhouse.
Rice,
Louise. ÒÔNobody Knows What Lesbian Health Is, Or What It Could BeÕ: An
Interview With Lesbian Health Activist and Doctor Barbara Herbert.Ó Gay Community News, April 16-22, 1989.
Herbert discusses the low risk involved in oral sex between women.
Rist,
Daniel Yates. ÒThe Deadly Costs of an Obsession: AIDS as Apocalypse.Ó The Nation, Feb. 13, 1989. Critiques the
obsession with Òthe epidemicÓ among lesbian/gay activists. Also contains information
on criticism of the San Francisco study that purports to show that 99% of
homosexual men with HIV will get AIDS, as well as evidence from New York
contradicting this conclusion.
Rose,
G. Steven, et. al. ÒSafe Sex.Ó Series of articles in Next, Feb. 1, 1989. Anti-sex ÒsaferÓ sex articles.
ÒSafer
Sex and Drug Use GuidelinesÓ and ÒDoing It Together, Another Look at Safer Sex
and Drug Use.Ó Gay Community News,
April 24-May 7, 1988. Conservative ÒsaferÓ sex advice from ÒradicalÓ lesbians
and gay men.
ÒSafe
Sex Guidelines for Lesbians at Risk.Ó Gay
Community News, Oct. 12-18, 1986. Very conservative, inaccurate ÒsaferÓ sex
advice for homosexual women.ÓSex and Solutions in the Fenway.Ó Unsigned
editorial in Bay Windows, June 30,
1988. Gay editor calls for the destruction of a cruising area where men have
sex with other men.
Sherman,
Laurie. Ò700 Lesbians Say Pussy.Ó Gay
Community News, Nov. 1988. Critical of lesbian ÒsexpertÓ JoAnn Loulan, who
encourages ÒsaferÓ sex for homosexual women, for not emphasizing AIDS enough in
her talk.
--------.
ÒLesbians and AIDS: What Are the Risks?Ó Gay
Community News, May 7-13, 1989. Discusses cases of woman-to-woman HIV
transmission.
Shively,
Charley. ÒAre You Ready to Die for Sexual Liberation?Ó Fag Rag, #40. Argues against giving up sex and discusses some
alternative theories of the causes of AIDS.
Silvia,
Ann Marie, et. al. ÒAAC Education Staff Responds to Safe Sex Article.Ó Letter
in Bay Windows, July 17, 1986.
Response to article ÒI Hate Safe Sex.Ó
ÒStudy:
Heart Disease Kills 1M in U.S. per Year.Ó Boston
Herald, Jan. 16, 1989. Gives statistics on deaths from heart disease,
cancer, and AIDS.
Sweeney,
Timothy J. Letter to The Nation, May
1, 1989. Discusses sources of GMHC funding.
Toufexis,
Anastasia. ÒNew Perils of the Pill?Ó Time,
Jan. 16, 1989. Cites statistics on breast cancer deaths.
Vidal,
Gore, Rist, Daniel Yates, et. al.ÓExchange, Gay Politics and AIDS.Ó The Nation, March 20, 1989. Letters on
RistÕs previous article in The Nation, and RistÕs response. RistÕs response
contains information on the myth of a lesbian AIDS epidemic.
Winkelstein,
Warren, et. al. ÒSexual Practices and Risk of Infection by the Human
Immunodeficiency virus.Ó Journal of the
American Medical Association, Jan 16, 1987. Report on study of men in San
Francisco showing minimal risk of HIV transmission via cocksucking.
Wockner,
Rex. ÒCanada AIDS Experts Give Green Light on Oral Sex.Ó Bay Windows, Oct. 6-12, 1988.
WomenÕs
Caucus of ACT UP/New York. ÒSafer Sex for Women.Ó in Aqua, #3, excerpted from
WomenÕs AIDS Handbook. Conservative ÒsaferÓ sex advice in an anarchist magazine
published by Anarcho Queers Undermining Authority.